The issues of data security, personal privacy and the overarching role of the internet are rarely out of the news. Google is in trouble for seeking access to NHS data.1 Firms such as TalkTalk have been fined for data breaches,2 prompting its boss to describe cybercrime as 鈥榯he crime of our generation鈥.3 The reported epidemic of trolling, cyberbullying and web abuse have sparked even the normally sanguine leader writers of The Guardian to lament that 鈥榯he internet can be a vile place...鈥4
This changing view of the web, as a dark and troubled landscape, has led to increasing calls for monitoring and policing the internet, to protect personal data and privacy. The Crown Prosecution Service is now seeking stiffer penalties for abuse on Twitter, Facebook and other social media.5 There is a proposal for an 鈥榠nternet ombudsman鈥 to police the internet.6 The normally reticent Information Commissioner鈥檚 Office (ICO) has lately become more forceful in taking action. Now, the Government proposes to enforce major fines of 拢17m, or four per cent of global turnover of organisations failing to prevent cyberattacks causing major disruption to transport, health or electricity.7 This comes as part and parcel of the General Data Protection Regulation (GDPR), which comes into force in May 2018, and is credited with having major effects on counsellors and counselling organisations.听
Counselling and data security breaches
Counsellors and counselling agencies might be thought to be less at risk of censure for data protection problems, given our strong professional and ethical commitment to protecting client confidentiality. However, respect for client confidentiality is no guarantee for understanding the fine detail of data protection, either in the past, or in the future under the GDPR. There are examples of counselling agencies losing sensitive client records, eg through the theft of unencrypted memory sticks, in the case of one bereavement agency.8 The BPAS was subject to an eye-watering fine of two hundred thousand GBP for systematic failures in its website security.9 The advice agency, AnxietyUK, was also subject to a recent enforcement notice, following similar concerns over levels of data security on its website.10 While much writing on the ICO and data protection tends to emphasise its rather scary role as an enforcer, it is clear that, major abuses aside, the ICO sees its role as a 鈥榣ight-touch鈥 educator, rather than as a heavy-handed regulator. The broad-brush basics of data security are not that complex to learn or to put into practice (see figure 1).
Changes due to GDPR
The changes introduced by the General Data Protection Regulation represent a shift in orientation towards the processing of personal data. Necessarily, this is a key task for counsellors and counselling organisations. In broad terms, the changes operate firstly at the level of organisational policy and then at the level of practice. At the policy level, organisations need to establish appropriate policies, for example, by nominating a data protection lead, with overall responsibility for data protection. Agencies need to develop sufficient levels of awareness among staff about good data security. Clearly, organisations need to notify the ICO of their data processing activities, or to 鈥榬egister鈥, with it, in everyday language. Where data processing is outsourced, e.g. by being held in a computing 鈥榗loud鈥, then care needs to be taken that the level of protection is compliant with the high levels already required within the European Community. The GDPR is designed to be Brexit-proof and will not be affected by the outcome of the Brexit negotiations. The Government is fully committed to implementing the GDPR and an updated Data Protection Act will follow on and become law in 2018.听
General Data Protection Regulation: main changes from the Data Protection Act 1998
- New requirements on data processors, those carrying out data processing activities, i.e. to maintain records of their work; greater legal liability for data breaches;
- New, broader, definition of personal data, eg to include identifying IP addresses; term 鈥榮ensitive personal data鈥 replaced by 鈥榮pecial categories of personal data鈥, to include identifying genetic or biometric data;
- New 鈥榓ccountability principle鈥, whereby organisations need to show how they comply with the data protection principles, eg by recording their activities, and by appointing a data protection officer;
- Enhanced protection of the rights of children with regard to data processing, e.g. the right to remove material from social media; no requirement for parental consent for data processing related to counselling;
- Information about data processing (鈥榙ata subject access request鈥) to be free, rather than require a fee of ten GBP;
- Duty to report data breaches, e.g. loss of client confidentiality, within seventy-two hours;
- GDPR to provide a 鈥榝loor鈥 of EU standards for data processing, with additional UK-specific areas, such as law enforcement and national security, to be covered by the proposed Data Protection Act 2018.
Despite the publicity surrounding the GDPR, there is still a nagging suspicion that there is actually rather less here than meets the eye, at least in terms of a radical overhaul of data protection. With the GDPR, however, it does seem that the devil will be in the detail. According to the ICO, 鈥榤any data security breaches are accidental and result from insider actions,鈥 rather than from external hacking. Counsellors will already have a keen awareness of the importance of maintaining confidentiality, but can sometimes be hazy on the fine detail of data protection practice, particularly at the more 鈥榟igh tech鈥 end of things. In terms of the practical application of the GDPR, organisations need to be clearer about how they protect client privacy, i.e. clarifying what client information is kept, how it is processed, how long it is kept for and for what purposes (see below: draft privacy and consent form for counselling clients).
Under the GDPR, there is a greater emphasis on client rights, such as the right to ask for their records under 鈥榙ata subject access requests鈥. The knotty, and still largely unresolved, question, i.e. of how long client records should be kept for, needs to be tackled by agencies and practitioners, by setting clear timescales for retaining, and then securely destroying, client notes. Generally, staff, including students on placement and volunteers, need to be well briefed and 鈥榦n board鈥 with the fine detail of data security. This will apply at the most basic level, as in the form of 鈥榗lear desks and clear screens鈥 practices (e.g. by using 鈥楥trl-Alt-Delete鈥 to lock screens). Counsellors will need to comply with minimal good practice in data security, by adopting and frequently changing 鈥榟ard to guess鈥 passwords, and by minimising their use of personal smartphones, laptops and tablets for work purposes. Basic data security will involve using passwords and encryption to protect any sensitive client material sent as email attachments. There will also be a greater emphasis on obtaining and recording explicit client consent for data processing needed for counselling activities (although this is acknowledged as not necessarily the 鈥榮ilver bullet鈥 of good practice, according to the ICO).12听
Data protection and time limits for keeping records
One of the issues raised at every workshop on record keeping is: how long should we keep records? Unhelpfully, there are several different answers to the question, depending on the context of counselling practice. Some records, e.g. in the NHS, may have statutory time limits set. Professional indemnity insurance policies may need checking before setting time limits for keeping counselling records, as these often stipulate that records are kept for substantial time periods, as defensive material in the case of professional complaint, or litigation. Access to client records by the police, Crown Prosecution Service, solicitors and courts, for use in legal cases involving clients, seems to be increasing, according to anecdotal evidence, although this need not directly influence the time limit set for retaining records as such. Research into data protection in higher and further education found that many counselling services in this sector applied a time limit of around six years, but often with no clear rationale for deciding on this limit. (Six years is the time limit for bringing legal action for breach of contract, which may be one, if not necessarily the sole, deciding factor here.)13 However, there is a clear principle under data protection law to keep records 鈥榥o longer than is necessary鈥. This countervailing principle can actually empower agencies and practitioners to set lower time limits for keeping client counselling records, according to their own context, agreed priorities and 鈥榮tandard industry practice鈥.14听
Impact of the GDPR
The impact of the GDPR will probably vary, according to the work or practice context of counsellors and counselling agencies. The three main contexts are those, firstly, of working in private practice, secondly, in small voluntary, or third sector, counselling organisations, and, finally, in larger public sector organisations.听
Data protection in private practice
Patti Wallace, formerly 香港六合彩精准资料鈥檚 professional lead for private practice, carried out an email questionnaire survey of 香港六合彩精准资料 members working in this sector (n: two thousand five hundred and forty-four). She found that 鈥榤ost respondents use a paper-based system to record client information and notes, although nearly a third (thirty-one per cent) were interested in moving to an online system. However, just nineteen per cent were registered with the ICO, and fifty-eight per cent were not aware that they should be registered.鈥15 This suggests that there could be a strategic awareness, training and compliance gap regarding data protection in this sector. Clearly, some private practitioners work in a range of settings, so may already have wider exposure to training and updating in data security, which they could easily transfer to their private work. Private practitioners, for example, engaged by employee assistance providers (EAPs), may be more likely to use bespoke electronic recording systems and to be required, via contract, to follow EAP data security policy and practices. Despite the seeming complexity of data protection law, the requirement for private practitioners to register with the ICO is fairly straightforward, that is, if using a smartphone, laptop, tablet or PC, to process any client personal data.听(see figure 3)
Data protection in small third sector organisations
This perception of problematic data protection compliance is also found in smaller, third sector organisations. The ICO has carried out its own small-scale research into policy and practice among victim support services (n: twenty-seven)16 and charitable organisations (n: thirty-two).14 These agencies are generally characterised by large numbers of volunteers, and consequent high staff turnover, while handling large volumes of sensitive client data, sometimes of a therapeutic nature. The surveys found good physical and building security and high levels of staff commitment to data protection. However, in practice, there were significant weaknesses in terms of a lack of policies for data security regarding staff while working from home, and in using personal electronic devices. This also applied in terms of a lack of basic IT security, such as using strong passwords, encryption and updated virus protection. Where agency work was subcontracted to third parties, contracts often failed to specify data protection roles and responsibilities, such as who was the data controller. Across the board, agencies failed to set out clear data retention policies and security, bearing out apocryphal tales of some manual client records being archived in employees鈥 lofts. Regular staff and volunteer training would thus appear to be critical in overhauling the data security culture in this field.听
Data protection in larger public sector organisations
Larger public sector organisations, such as schools, universities, the police and the NHS, will presumably already have data protection officers and policies in place. They may also have less of an immediate problem with the provision of staff training, although it would be good to make less frequent use here of the 鈥榝ear factor鈥 as a prime motivator. Much online staff training in data protection in this sector seems incomplete without frequent references to sacked admin staff, or disgraced marketing managers, brought low by lazy email etiquette, or by poor data security. Large public sector organisations are perhaps at higher risk, in terms of the sheer volume of sensitive data they need to handle (e.g. about mental health, disability), frequently leading to heavy ICO fines when files are lost, or inappropriate information is emailed and systems are hacked. In terms of protecting counselling confidentiality within larger organisations, it has been very useful, in the past, to have sector-specific codes of practice, such as the unfortunately now-defunct JISC Code of Practice for further and higher education.17 This could often prove useful for protecting counselling client confidentiality and in warding off the enquiring efforts of over-zealous data protection officers.听
Privacy as a data protection issue
What is perhaps most striking is the emerging focus on privacy as a key data protection issue. As counsellors, we may well pride ourselves on being alert to the need to protect client confidentiality, i.e. the content of client-counsellor interactions. Privacy, as distinct from confidentiality, 鈥榬efers to information about the client attending counselling鈥, such as their identity, or other key personal characteristics.18 Privacy issues are clearly central to counselling as a professional activity. Examples of potential challenges to privacy include, for example, the particularly sensitive issues for trans people, concerning their medical records, which may refer to a previous gender.19 The increasing use of CCTV in hospitals and in schools raises real concerns about threats to privacy, especially when used in counselling suites.20 Agencies with a counselling remit may also come unstuck in trying to adapt to new technology. This apparently happened in the case of the Samaritans鈥 use of a Twitter 鈥楻adar鈥 app, designed to alert Sams when service users were 鈥榮truggling to cope鈥.21听
Privacy issues can be particularly acute for specific client groups, such as children and young people. The campaign group iRights has highlighted the case for young people to have embarrassing and irrelevant material deleted from social media, via 鈥榯ake down notices鈥.22 Thus, in Northern Ireland, a girl aged fourteen is currently suing Facebook, in order to remove a 鈥榬evenge鈥 naked photo from its web pages.23 There has also been the recent successful challenge to Scottish government information-sharing policy required for Getting It Right For Every Child (GIRFEC), again on privacy grounds.24听
Privacy issues are thus being taken more and more seriously within the law generally; witness the recent, perhaps surprising, judgment protecting employees鈥 right of privacy, regarding personal emails at work.25 The law on privacy is a fast-developing field, in which the GDPR and new DPA 2018 are likely to make an increasingly significant contribution. This is a major legal shift since even the Naomi Campbell privacy case, in 2003. Here, the Data Protection Act 1998 was seen to be of little relevance in resolving the case, compared with the more influential Human Rights Act 1998 (Campbell v MGN Limited [2004] UKHL 22).
Conclusion
If the GDPR, ICO, DPA, and other agency initials, are there to protect client privacy, the real difficulty lies in the growing commercial value now placed on exploiting personal data, whether we choose to call this the new 鈥榙ata capitalism鈥, or not.26 In this global marketplace, 鈥榩ersonal data is the 鈥済old鈥 of a new category of companies... that sell this information...鈥27 This presents a real tension around the position of counsellors, as custodians of their clients鈥 personal data, given the growing pressures to exploit health data, amidst the mediating role of regulatory bodies, such as the ICO. But maybe we need to look well beyond this, and try also to understand the web at much more of a symbolic and relational level. On these lines, a Guardian journalist, Charles Arthur28 has referred to the internet in a striking image of the ideal Victorian prison. In what he tellingly calls 鈥榯he panopticon of the web鈥, here everything is revealed and nothing is ever forgotten 鈥 rather like the unconscious, in fact. The real challenge for therapists, perhaps lies in helping to decode some of the more symbolic meanings of the web, while protecting the privacy of client secrets shared in therapy, and by continuing to explore the implications for our own practice.
Peter Jenkins is a counsellor, trainer, researcher and supervisor. He is the author of Professional Practice in Counselling and Psychotherapy: Ethics and the Law, published by Sage.
References
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